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古斯塔沃出生早产六周食管闭锁、食管的出生缺陷(吞咽管)没有连接到胃,和气管瘘、食管和气管之间的连接异常(气管)。他有他的第一个许多手术在短短两天的时间来修复出生缺陷。
To allow his body to heal from surgery and receive the nutrition he needed, Gustavo had a feeding tube placed in his stomach. At 8 months old, his mother, Glenda, of Medford, Mass., transferred his care to MassGeneral Hospital for Children (MGHfC). At the age of 8, Gustavo was cleared to eat solids and sent to the ;MGHfC Feeding Team and Lauren Fiechtner, MD, director of nutrition in ;Pediatric Gastroenterology and Nutrition at MGHfC.
“古斯塔沃有一个复杂的病史,他不能吃任何东西的嘴直到2015的春天,”Fiechtner说。“他是一个快乐的人,他用微笑和笑声充满了房间。很荣幸成为gustavos保健的一部分,看到骄傲的他是成功的。他的恢复力是惊人的。”
Since working with the MGHfC Feeding Team, Gustavo has been making strides in learning how to chew and swallow and working closely with Christine Cooper-Vince, PhD, a postdoctoral Psychology fellow in ;Child and Adolescent Psychiatry at MGHfC. Through feeding therapy with Cooper-Vince, Gustavo has been practicing chewing and swallowing new foods one bite at a time and working his way toward trying more new foods and larger bites.
“古斯塔沃的工作的做法,旨在帮助他加强咀嚼和吞咽能力,同时也建立了他的信心,他有能力安全地吃新的食物的嘴。他们也被设计来帮助减少窒息的恐惧。我们通过反复练习咀嚼和吞咽食物,直到恐惧减少了在日益困难的食品,”Cooper Vince说。“古斯塔沃给他的喂养治疗带来了一种能量和热情,这种疗法是有感染力的。当他成功地嚼吞了一个新的食物,房间里爆发出欢呼,他一定会给大家一个庆祝的高五。这是一种特权,与古斯塔沃和他的家人一起工作,帮助他实现他的目标。”
当古斯塔沃收到清晰的尝试固体食物,他想尝试的第一食品是奥利奥®;。“这是我第一次尝试是艰难的,但不用真的很好!“他说。其他的事情他喜欢冰棍®;和水。
“大量的水!“我喜欢水,”古斯塔沃说。
现在,古斯塔沃仍然通过他的进食管接收食物,因为他发展他的饮食技巧。“他每天都过得更好,”格伦达说。他正在学习如何把食物从一个侧面移动到另一个,但他可以尝试许多新的食物。Fiechtner博士和饲养团队已经帮助他在许多方面。”
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